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Scared for my niece

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worried-sister1205
08 July 2012 at 11:23

Scared for my niece

My niece, Amie is 3 years old and she's had a lot to deal with this year. In March her parents commited suicide, and now she's been diagnosed with Lukimia. I feel horrible. I know non of it was my fault and I couldn't have stopped it but I'm meant to be helping her, how can I keep her happy when I know she may be dying? Please help.
Jen301
08 July 2012 at 15:10

hi

im really sorry for everything you and your niece are going through.... to lose your sister and be trying to help her daughter that must be sooooo hard. So just remember how brave you are keeping strong and trying to do your best.

It really isnt your fault and you ARE helping her, just by being there. I think that it will mean a lot to Amie that you are there by her side and she still has you, her family, to be there for support. If she is ill with leukimia then it would just help her having u spend time and smile and laugh and make her time positive...... maybe take her favourite films round to watch together, make pizzas together or make her a photo album with special pictures inside. Do art together or anything that she enjoys to make her feel better. Those things even if they seem small those things are what means a lot, because youre spending time with her and making her feel special

hope you're okay

Love Jen
xxxxxxxxxxxxxxx

eve23
09 July 2012 at 14:29

worried-sister1205 - 08 July 2012 at 11:23

My niece, Amie is 3 years old and she's had a lot to deal with this year. In March her parents commited suicide, and now she's been diagnosed with Lukimia. I feel horrible. I know non of it was my fault and I couldn't have stopped it but I'm meant to be helping her, how can I keep her happy when I know she may be dying? Please help.

Hay sweetie. I'm really sorry for everything you've had to go through. You're neice will just want her family to be with her, and to show her that you all love her, so pleanty of kisses and hugs. Hopefully Amie'll pull through, I'm here if you want to talk.

missfiesty
09 July 2012 at 16:30

Hi

I'm sorry for whats happened I hope you and Amie are ok and I think your mega strong to be coping with all this. It's not your fault it's been hard on you aswell. But you can stay strong. Do things she likes or something different. I like Jen's idea of a photo album/scrap book. BUt pictyres of happy times of you her and even her parents so she can remember them when she grows up and can remember the good times. Try baking being creative having a picnic and just doing things that are fun. THings that'll make her smile.

Hope your ok

xxxxxxx

worried-sister1205
12 July 2012 at 13:11

Jen301 - 08 July 2012 at 15:10

hi

im really sorry for everything you and your niece are going through.... to lose your sister and be trying to help her daughter that must be sooooo hard. So just remember how brave you are keeping strong and trying to do your best.

It really isnt your fault and you ARE helping her, just by being there. I think that it will mean a lot to Amie that you are there by her side and she still has you, her family, to be there for support. If she is ill with leukimia then it would just help her having u spend time and smile and laugh and make her time positive...... maybe take her favourite films round to watch together, make pizzas together or make her a photo album with special pictures inside. Do art together or anything that she enjoys to make her feel better. Those things even if they seem small those things are what means a lot, because youre spending time with her and making her feel special

hope you're okay

Love Jen
xxxxxxxxxxxxxxx

Thanks Jen. I took your advice and we're making a scrapbook with pictures of the family in it, Amie still seems to be so happy, In a way I'm glad she's too young to properlly know what's happening to her.

Love XxYvonnexX

Jen301
12 July 2012 at 19:35

worried-sister1205 - Today at 13:11

Thanks Jen. I took your advice and we're making a scrapbook with pictures of the family in it, Amie still seems to be so happy, In a way I'm glad she's too young to properlly know what's happening to her.

Love XxYvonnexX

hey yvonne :)

how are you??? really lovely to hear back from you i really hope ur okay!

thats so lovely thar you guys have made a scrapbook and stuff, it will help and hopefully you can all share it together. How is Amie doing? if she is being positive through it then thats good and you can all be there for each other cos i am sure you both must be scared. But you CAN do this.. honestly...

thinking of you, lots of love
Jen

xxx

worried-sister1205
12 July 2012 at 20:28

Jen301 - Today at 19:35

hey yvonne :)

how are you??? really lovely to hear back from you i really hope ur okay!

thats so lovely thar you guys have made a scrapbook and stuff, it will help and hopefully you can all share it together. How is Amie doing? if she is being positive through it then thats good and you can all be there for each other cos i am sure you both must be scared. But you CAN do this.. honestly...

thinking of you, lots of love
Jen

xxx

I'm ok, thanks, You? Amie's really upbeat and happy just now, though she gets tired really easily. She knows she's ill but she doesn't know she can die, we just keep telling her the doctors will "make you all better." I really hope the doctors can help her, she's far too young to die, we've already lost her parents without losing her too.

Thanks for talking to me Jen, It helps

Love Yvonne xxxxx

missy787
13 July 2012 at 01:17

Hey Sweetie,

You are already doing an amazing job of being a fantastic auntie to your neice with what she is going through and just by posting on the message boards here, I can see what a kind, lovely and genuine girl you are just wanting to help and look after your neice which is what any loving family member should want to do for one another.

I know it may feel like its your fault and you feel like you have no control over what is happening, like its all going so fast but none of what is happening is your fault. It isnt fair your right and no one desreves to get cancer like this, especially when you are so young. It is something I wouldnt wish on anyone but I do know that although Luekemia may battle her body and make her very ill, it will never take away who she is, however young she is, she is still your niece and she will always be that. All I can say, is just to try and hold on to those good moments over the next few weeks. What has the doctor actually said to you and your niece? Is she having treatment at the moment? Becuase unles you have been told its terminal, it may not be.. Becuase people can and DO beat Leuekmia, it is possible. I know you may not see it right now, but when there is life there is hope<3 One if my most amazing friends had ALL leukemia and unfortunatly it did turn terminal after many years and she did pass away but what I can say.. Is how she didnt let the disease take her away becuase throughout it all she kept smiling, kept positive, kept being the girl who I loved so much, even supporting me through my times even when she was going through so much herself. And even though she is gone now, and I cant see or be with her, whenever I miss her or need reminding of her smile I jsut wait till its dark, I go to my window, look up to the stars, find the brightest and know thats her shinning down, looking after me<3

I do understand how difficult it is right now but you are being so brave and strong coping with all of this and Im always here to support you too. You are already being amazing to your niece, just treasure the time you have together when she is feeling 'well and make memories, books, photos, scrapbooks, making playlists and just doing fun thigns like making a teddy bears pinic and sitting outside in the gardern or the park or if she has to stay in hospital, make her room into a park or her fav tv show.. Just keep smiling and I know its hard but we will all support you on childlie in any way I can.

I hope your okay, always here if you want to talk. Take care.

Missy. xxx

Jen301
13 July 2012 at 02:51

worried-sister1205 - 12 July 2012 at 20:28

I'm ok, thanks, You? Amie's really upbeat and happy just now, though she gets tired really easily. She knows she's ill but she doesn't know she can die, we just keep telling her the doctors will "make you all better." I really hope the doctors can help her, she's far too young to die, we've already lost her parents without losing her too.

Thanks for talking to me Jen, It helps

Love Yvonne xxxxx

hey,

glad ur alright, i know how hard all this is for you.... yeah am not bad, struggling with a few things at the mo but am still going soo guess am okay. It must be really hard to see her so tired and ill and im sure youre probably scared and worried.. at least she is positive though and keepin strong. Its really heartbreaking how such young children can get such horrible illnesses and people who dont deserve it at all... Amie is obviously a strong person and very brave though so you can smile knowing she is making through it all.

Do the doctors have a prognosis, like how is her treatment going? i know it must be so tough on you, but you are really doing such an amazing job being there for her... I just know it will mean the world to her... to have you by her side and helping her when she feels down or ill. maybe some times she gets tired and things from her illness but deep down you know she is still the same person and still a young girl same as everyone else who just wants to have fun times and spend time with family :) so you are being an amazing support to her, she is really lucky to have you there by her side to keep her going.

you're very welcome, im glad it helps even a little bit. Im always here for you, am about most days so ill reply as soon as possible. Hope you're day has been okay and Amie is alright today.

Lots of love
Jen

xxx

worried-sister1205
13 July 2012 at 11:07

missy787 - Today at 01:17

Hey Sweetie,

You are already doing an amazing job of being a fantastic auntie to your neice with what she is going through and just by posting on the message boards here, I can see what a kind, lovely and genuine girl you are just wanting to help and look after your neice which is what any loving family member should want to do for one another.

I know it may feel like its your fault and you feel like you have no control over what is happening, like its all going so fast but none of what is happening is your fault. It isnt fair your right and no one desreves to get cancer like this, especially when you are so young. It is something I wouldnt wish on anyone but I do know that although Luekemia may battle her body and make her very ill, it will never take away who she is, however young she is, she is still your niece and she will always be that. All I can say, is just to try and hold on to those good moments over the next few weeks. What has the doctor actually said to you and your niece? Is she having treatment at the moment? Becuase unles you have been told its terminal, it may not be.. Becuase people can and DO beat Leuekmia, it is possible. I know you may not see it right now, but when there is life there is hope<3 One if my most amazing friends had ALL leukemia and unfortunatly it did turn terminal after many years and she did pass away but what I can say.. Is how she didnt let the disease take her away becuase throughout it all she kept smiling, kept positive, kept being the girl who I loved so much, even supporting me through my times even when she was going through so much herself. And even though she is gone now, and I cant see or be with her, whenever I miss her or need reminding of her smile I jsut wait till its dark, I go to my window, look up to the stars, find the brightest and know thats her shinning down, looking after me<3

I do understand how difficult it is right now but you are being so brave and strong coping with all of this and Im always here to support you too. You are already being amazing to your niece, just treasure the time you have together when she is feeling 'well and make memories, books, photos, scrapbooks, making playlists and just doing fun thigns like making a teddy bears pinic and sitting outside in the gardern or the park or if she has to stay in hospital, make her room into a park or her fav tv show.. Just keep smiling and I know its hard but we will all support you on childlie in any way I can.

I hope your okay, always here if you want to talk. Take care.

Missy. xxx

The doctor told me that they need to run tests on her and that it’s a mild form just now, but it could turn aggressive. They’re injecting her with stuff and they want to give her a marrow transplant at somepoint. They just told Amie, that she’s very sick and they need to give her medicine to try and make her better. She’s getting kemo, I think. Thanks, Missy. xxx

missy787
15 July 2012 at 19:04

worried-sister1205 - 13 July 2012 at 11:07

The doctor told me that they need to run tests on her and that it’s a mild form just now, but it could turn aggressive. They’re injecting her with stuff and they want to give her a marrow transplant at somepoint. They just told Amie, that she’s very sick and they need to give her medicine to try and make her better. She’s getting kemo, I think. Thanks, Missy. xxx

Hey sweetie,

Im glad that the doctors are taking good care of her and I know that she will be scared and you will be too but she is in the best hands. Let me know how the tests go and what the results are. I understand about the bone marrow transplant maybe at a point, I know that is a scary thought but a bone marrow transplant for a Leukemia patient can be a really good thing with some people. It is a long process but in the end it can have some really good results. I have a lot of medical problems myself and In the past when I was very ill, the doctors talked to me about bone marrow and transplants. It didnt happen in the end as they went down another route but I udnerstand the conspect of what it involves. Do you know if you are a match for her?

I know you both will be very scared and Amie too but I know that she is in the best care. Try and keep yourself as postive as you can and jsut act normal around her, bring in things she like and fun games and scrapbook books, colouring to do or jsut bring some photos that make her smile so she can make her hospital room her own as she will spend alot of time in there. She will find it hard at times and wont feel very well, and will feel sick and depending on how strong the chemo is will depnd on how it effects her. But the doctors and nurses will look after her, I know its hard but I know how strong you are and she will be too, a little fighter she is<3

Im always here if you want to talk to becuase I know its really tough for you too. Always here if yuou need support. Hope your okay, take care.

Missy. xxx

worried-sister1205
17 July 2012 at 14:01

missy787 - 15 July 2012 at 19:04

Hey sweetie,

Im glad that the doctors are taking good care of her and I know that she will be scared and you will be too but she is in the best hands. Let me know how the tests go and what the results are. I understand about the bone marrow transplant maybe at a point, I know that is a scary thought but a bone marrow transplant for a Leukemia patient can be a really good thing with some people. It is a long process but in the end it can have some really good results. I have a lot of medical problems myself and In the past when I was very ill, the doctors talked to me about bone marrow and transplants. It didnt happen in the end as they went down another route but I udnerstand the conspect of what it involves. Do you know if you are a match for her?

I know you both will be very scared and Amie too but I know that she is in the best care. Try and keep yourself as postive as you can and jsut act normal around her, bring in things she like and fun games and scrapbook books, colouring to do or jsut bring some photos that make her smile so she can make her hospital room her own as she will spend alot of time in there. She will find it hard at times and wont feel very well, and will feel sick and depending on how strong the chemo is will depnd on how it effects her. But the doctors and nurses will look after her, I know its hard but I know how strong you are and she will be too, a little fighter she is<3

Im always here if you want to talk to becuase I know its really tough for you too. Always here if yuou need support. Hope your okay, take care.

Missy. xxx

Hi. I'm not a match, but my little sister is, so they're going to try a blood transfusion as well as kemo. I just hope it works.

missy787
19 July 2012 at 00:42

worried-sister1205 - 17 July 2012 at 14:01

Hi. I'm not a match, but my little sister is, so they're going to try a blood transfusion as well as kemo. I just hope it works.

Hi lovely,

That's really good news that your little sister is a match and that the doctors are thinking about giving her a blood transufusion and chemo at the same time. This is all good and although it is very scary for Amie, she is a strong girl like her auntie im sure. And she is in very good care with the doctors and nurses, they will take care and look after her I promise you.

I hope your okay though too, I know it must be really stressful having all of this problems on top of you, remember that you always desreve support too as this isnt easy to cope with on your side either. But you are being so strong and a great, supportive auntie for amazing little amie.

Always here for you, Take care.

Missy. xxx

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